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RSRF's vision is a cure for Rett Syndrome. RSRF's mission is to fund, promote and accelerate biomedical research for the treatment and cure of Rett Syndrome.
RSRF was founded in late 1999 by a small but passionate group of parents who are confident that an organization focused aggressively and exclusively on biomedical research would accelerate the discovery of treatments and a cure for this devastating disorder.
Today, RSRF is the world's leading private funder of Rett research. In the last five years RSRF has funded 82 projects at 57 of the world's premiere institutions totaling approximately $ 8.8 million. Furthermore, RSRF organizes the only annual scientific meeting devoted to Rett Syndrome. Each June RSRF convenes over 100 researchers and clinicians from around the world for a three day Rett Syndrome symposium
As a volunteer driven organization RSRF has raised millions since its’ inception. The foundation has proven to be fiscally responsible by directing 97% of each dollar donated directly to program services. RSRF was recently awarded a 4-Star rating from Charity Navigator, America's premier evaluator of not for profit organizations. The rating, which spotlights the organization's sound fiscal management, indicates that RSRF outperforms most charities in America in its efforts to operate in the most fiscally responsible way. "This exceptional rating differentiates the Rett Syndrome Research Foundation from its peers and proves that they are extremely worthy of the public's trust", said Trent Stamp, Executive Director of Charity Navigator.
No one is more motivated to find treatments and a cure for Rett than parents whose children are suffering. With prominent researchers around the world now focusing on the disorder, leading scientists serving as Foundation advisors, and a strongly committed Board of Trustees and staff, RSRF is confident that its vision will be realized
For more information go to the RSRF website: http://www.rsrf.org/
Factoids:
*There are only 6 genetic diseases that affect only girls. Rett Syndrome is, by far, the most common of them
*Rett Syndrome is the leading genetic cause of severe impairment of girls
*Rett Syndrome is the only autism spectrum disorder with a known genetic cause
*There are 15,000 girls with Rett Syndrome in the US. Most are undiagnosed
*Rett Syndrome has been shown to be preventable in animal models
*Studying Rett Syndrome will help us to understand autism, schizophrenia, bipolar disease, Parkinson’s and more
*Thank you for supporting Rett Syndrome Research
*97% of your donation will be channeled to Rett Syndrome Research Foundation’s programs
*Scientists are currently attempting to reverse Rett-like symptoms in an animal model
*The Rett Syndrome research field has attracted some of the world’s best scientific minds
*Each day 18 girls with Rett Syndrome are born throughout the world.